Blood Disorder and Pregnancy, decisions!

Grab a snack, this is gonna be my longest post YET!

Most of my friends and family already know that I have a blood disorder that forces me to take daily injections during my pregnancy of Lovenox (blood thinner). I think I am explained it in general terms just to keep from boring people with the details but I thought I would go into more detail to explain just how a blood disorder effects my life and my pregnancy.

History: I found out about my blood disorder back in 2003 when my father got admitted to the hospital for a blood clot they found in his left leg. It took the Dr's weeks, if not months to figure out how this man got a blood clot since it came from out of the blue. Finally, he met with a hemotologist that found he had a mutation called Prothrombyn Factor II. His Dr. encouraged all in the family to go and get tested. I immediatly ran out and got tested and was positive. I think some of my other family members randomly went out and got tested, but not all.

This diagnosis gave the Hubbard family a little insight to how my grandmother Margaret passed away at the age of 49. She suffered from a stroke along with colitis. Back then they didn't do deep genetic testing, so it seems that this genetic disorder has found its way through our family. She likely had a blood clot that caused her stroke!

A few years later, my cousin McKinley was pregnant and sadly lost her baby girl at 6months in utero, which you can imagine how devastating this was. I know she spent many agonizing weeks, if not months trying to understand how this happened. She had not been previously tested for our blood disorder. Through many questions, even an autopsy of her baby girl, they found nothing. It wasn't until McKinley learned that she herself had a similiar blood clotting disorder called MTHFR which is actually the longest word ever, so the abbreviation is probably easier to say. They determined that the baby was losing nutrients due to a blood clot in the placenta. (McKinley has since had 2 successful deliveries of 2 gorgeous baby girls).

Needless to say, all of my family history, including the most recent with my cousin's loss made me very aware when I found out I was pregnant with Ryan. My Dr. took charge and immediately sent me to a genetic counselor and put me on Lovenox that I would take throughout my pregnancy and this also put me in the high risk category.

My pregnancy with Ryan went GREAT! Lovenox did the trick. The only thing they had to do was take me off the medication 24 hours in advance of my scheduled induction and put me in these silly leggings with balloons around my legs until I was allowed to leave the hospital!

My delivery with Ryan resulted in a C-section, only for the reason that when they induced me, I was not apparently ready to deliver. I spent 12 hours in labor and only reached 3cmm and each contraction was causing Ryan's heart rate to drop, making it dangerous for him.

In 2009, I was going to a Gastroenterologist for my throat which had been driving me crazy. He wanted to do a quick procedure to go down my throat to make sure everything was okay, but wanted me to see a Hemotologist to be cleared for such a procedure. I went and had an entire blood panel taken... we're talkin vials and vials of blood!! The Hemotologist called me back confirming my Prothrombin Factor II disorder I already knew about, but actually have 3 disorders! I was shocked! I too have the MTHFR and also Factor V Leiden (this one doubles the risk that a person will have a DVT during their life). Yikes!

On a normal day to day basis, I just take a baby asprin a day, so its not too bad!

So, we are now on to my 2nd pregnancy with Reese. I am back on Lovenox and I am lucky to have a patient and loving husband to give me my shots each night. Its not too bad. I get a bruise here and there, but its worth it.

I have thought through previous conversations with my Dr. that I was looking at having another C-section, no questions asked. For those close to me, you know how devastated I was to have Ryan by C-section because I so desperatly wanted to experience the natural delivery (with drugs of course). So, the thought that I couldn't have a natural delivery EVER was disappointing. Until this weeks Dr. appt. I asked again about VBAC (vaginal birth after Cesarian).

There are so many things to think about, or at least I feel like there are.

Week 36 of this pregnancy, my Dr. is switching me over to Heprin. I will begin taking this injection 2x a day. Heprin lasts for 12 hours vs. Lovenox which lasts 24 hours. Either way, the medication would have to wear off in order for them to give me a spinal or epidural, otherwise it could lead to being put under general anastesia which just sounds awful to me.

S0, if the moons and stars line up and I go into natural labor, it is better to be on Heprin b/c the window of opportunity is a lot less to allow them to give me a spinal and go in for a C-section, OR allowing me to through a natural delivery with an epidural. The natural delivery part is so exciting to think about, but could also end up resulting in a C-section anyway if Reese is in distress like Ryan was and there's also the chance that I could be progressing faster than the Heprin window and end up not being able to get an epidural. Confusing right!?

Agh, the thought of having a natural delivery sounds so amazing. The idea of Reese being pulled out and laying her on my chest while Erik gets to cut the cord just makes me smile. Although this route could to lead to no epidural and possible hours of exhaustion from laboring and pushing.

Or I can stick to the original plan and go in for a scheduled C-section.

I just don't know. At our 36 week check up, when we switch to Heprin I think we will discuss it more. I guess we just don't know what Reese will do. The hospitals have gotten more strict since I had Ryan and unless there is a medical reason (blood pressure, something is wrong with the baby), they cannot take Reese by C-section any earlier than 39 weeks which would be June 18th, but of course if we went the route of C-section, we would have to work on scheduling it based on when my Dr. could be available. So, maybe we just let that happen and if its meant to be that I have a natural delivery, Reese will be the one to let us know by coming earlier than the scheduled C-section and if not, then that's our choice.

Complicated and I guess knowing that natural delivery is an option has my brain working overtime trying to think of all the possiblities of what could happen. Luckily this doesn't effect my laid back husband Erik who is always so calm and cool.

So, that is my story... any questions!? HA!
Love to all!
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Amy said...

I remember sitting with your dad, Aunt Connie and Aunt Linda, at McKinley's wedding as they joked about our family of mutants. :) I'm so grateful that the dr's are able to diagnose and manage these blood disorders. I am praying for you and your pregnancy! Love, Amy

Saba said...

During routine prenatal care, your doctor will test your blood type. Part of your blood type is determined by the appearance of a protein on your red blood cells. If you have this protein, you are said to be Rh positive. If you lack the protein, you are Rh negative. If you are Rh negative and your partner is positive, there is a possibility that your baby may be Rh positive. If any blood from the baby crosses into your bloodstream, you will become sensitized. Buy Periactin This means that your immune system will create antibodies against these foreign red blood cells. This can affect the health of the baby.

ANWAR KHAN said...

Perfect piece of writing rich in information. I have been looking for such a post for a long time.
how do i get pregnant l Find me girl

Liza Krystal said...

The natural delivery part is so exciting to think about, but could also end up resulting in a C-section. gout in ankle